INTERSTITIAL LUNG DISEASE – INTERDISCIPLINARY NETWORK LIMITED (ILD-IN) company number 10065529 was established to provide a supportive network, promote ILD specialty practice through education and professional development and to influence the policy of ILD care. This privacy notice sets out how ILD-IN uses and protects any personal information that you give us when you visit our website or become a member. ILD-IN is committed to ensuring that your privacy is protected. When we ask you to provide certain information by which you can be identified, then you can be assured that it will only be used in accordance with this privacy notice. ILD-IN may change this notice by updating this page, so please check here from time to time to be sure that you are happy with any changes.
We are a “Data Controller” for the purposes of the EU General Data Protection Regulation 2016/679 and the Data Protection Act 2018 (“Data Protection Law”). This means that we are responsible for and control the processing of your personal information.
When you contact us we will record your name, organisation name, address and relevant phone and email contact details. If you request membership of ILD-IN we will also ask for information about your professional qualifications, registration and employment. We will collect only such information as is necessary for us to operate and deliver our services to you. We use a third party to collect payments on our behalf, so do not ourselves hold any financial information. If you contact us via our website or by email we may also collect some technical information about the system you used; this information might contain data that could identify you and includes:
We will use the information you give us voluntarily to administer ILD-IN, to verify your professional status and to provide our services to you, communicating mainly by email and phone. You have the option to unsubscribe from these communications at any time, although we will continue to send you essential membership information whilst you remain a member. We will ask your permission before we publish on our website any document or presentation you may deliver to us and may ask to include a photo and other information about you. We will use any technical information we may collect solely to provide security to our systems and information about how our systems are used, seeking to improve the delivery of our service to you. We will not use it to identify you.
We work with various organisations who help us to deliver our services and are “Data Processors” on our behalf – these are bound by a confidentiality agreement neither to use nor to share the data with any other organisation, but to protect and keep the data securely. We do not share your personal information with anyone else.
Information is stored in our website servers, operated by a third party in the UK, who necessarily have administrator access to our systems and the data stored in them. Our administration is provided by Executive Business Support Ltd of Lichfield, UK who are a Data Processor on our behalf and have access to the website and all our data. Our website is provided by Daneswood of Exeter, UK who are also a Data Processor on our behalf and have access to the website. We may share anonymous information from use of our website with analytics and search engine providers to help us improve the website and get a better understanding of how it is used.
We will retain your personal information while you are a member and for up to two years after you have ceased membership or last communicated with us. We will annually delete all personal information we may hold that has not been used in the previous two years. Exceptionally, if you have supplied materials or resources that we have published on our website, publicly or for members only, we may leave your picture and any biographic information associated with that material on the website whilst it remains relevant.
Our systems are designed and implemented with data protection in mind. We use appropriate technical and organisational security measures against unlawful or unauthorised processing of personal information, and against the accidental loss, destruction or damage to personal information. These measures apply to personal information from the point of collection to the point of destruction.
You have various rights in respect of the personal information we hold about you, including the right to ask us for a copy of the personal information we hold, to update or to stop processing your personal information. If you wish to know more about these rights, please visit the website of the Information Commissioner’s Office (ICO) at https://ico.org.uk. If you wish to exercise any of these rights or make a complaint, you can do so by contacting us at the address shown below. If we are unable to resolve your complaint you can make a complaint to the data protection supervisory authority, the ICO.