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About Us

Mission Statement

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Act

To act as a professional body that can influence and practice in ILD care throughout the UK

Support

To provide a supportive network for ILD network members to encourage information sharing, best practice and research collaboration

Influence

To influence improvement and developments in ILD care

Collaboration icon

Collaborate

To encourage collaboration with all interdisciplinary ILD specialists

Opinion icon

Provide Opinion

To provide expert opinion to raise the standard and provision of ILD care

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Promote

To support and promote equality in service provision for patients with ILD and their carers through the UK

Act icon

Act

To act as a professional body that can influence and practice in ILD care throughout the UK

Support

To provide a supportive network for ILD network members to encourage information sharing, best practice and research collaboration

Influence

To influence improvement and developments in ILD care

Collaboration icon

Collaborate

To encourage collaboration with all interdisciplinary ILD specialists

Opinion icon

Provide Opinion

To provide expert opinion to raise the standard and provision of ILD care

Promote Icon

Promote

To support and promote equality in service provision for patients with ILD and their carers through the UK

Who we are

The Interstitial Lung Disease Interdisciplinary Network (ILD-IN) is a supportive and collaborative network for health professionals of all disciplines caring for people with interstitial lung disease (ILD).

Meet The ILD-IN committee

The committee oversees delivery of the objectives of the ILD-IN and acts on behalf of the membership. The committee consists of 13 members encompassing a broad professional spectrum incorporating specialist nurses, pharmacists, allied health professionals, doctors and researchers. Alongside interdisciplinary diversity, the committee has national and international representation. Click on each member to find out about their roles, interests and contact details.

Executive Board

Role:
Co-Chair

Organisation:
Guy’s and St Thomas’ NHS Trust (GSTT)

Marium Naqvi

Research practitioner and highly specialist ILD pharmacist

In addition to her role as co-chair of the ILD-IN, Marium chairs the ILD Pharmacist Network. She is the project lead at GSTT for the NHS Digital funded implementation of a remote monitoring programme in patients with ILD. Research interests include the psychological impact of disease, adherence to therapy and the use of digital technology to improve patient outcomes and access to specialist care. To improve patient accessibility to specialist care, Marium is working across the London and the South East of England network to develop care pathways, guidelines for the management of ILD patients and provide education and training. Marium is an independent prescriber who manages a complex cohort of patients, including medication review, optimisation of therapies and managing the monitoring and supply of high risk and/or cost medicines.

Role:
Co-Chair

Organisation:
Hywel Dda University Health Board, West Wales

Jenny Lynch-Wilson

Lead ILD CNS

Jenny is Lead ILD CNS for Hywel Dda University Health Board, based in West Wales. She started her Respiratory career 25 years ago, initially on Respiratory wards/Cystic Fibrosis Unit in Llandough Hospital, and then as a COPD Nurse Specialist/oxygen nurse with CRRU. In 2013 she relocated with her husband and children to a small predominantly Welsh speaking village to live the ‘Good Life’ on a smallholding, now spending her spare time tending to their sheep/goats/ducks/geese/dogs!As there was no ILD service for patients within the Hywel Dda UHB , in 2017 she established the ILD CNS role, coordinated and presented at the regional ILD MDT in Cardiff to ensure the patients received accurate diagnosis and management. She now runs nurse led ILD clinics across the health board in Carmartheshire, Ceredigion and Pembrokeshire, and the ILD team has expanded to two nurses and two consultants. She has a passion for palliative care and the use of digital health platforms and tools such as PKB and telehealth for monitoring and improving patient care in the rural environment.

Role:
Secretariat

Organisation:
East Lancashire NHS Teaching Hospitals

Janine Hood

Respiratory Advanced Practitioner

Janine has been a nurse for 33 years and has worked in the field of Respiratory Nursing for almost 25 years. During that time her passion for, and experience in Interstitial Lung Disease (ILD) care has grown. She completed the MSc in Advanced Clinical Practice in 2015 and is a full time Respiratory Advanced Practitioner for East Lancashire NHS Teaching Hospitals, based in Secondary Care. She intends to take early retirement and return on a part-time basis in May 2023. Since 2013 Janine has been improving services for ILD patients in East Lancashire; the local ILD service has grown from a local DGH with no subspecialty in ILD to now being part of the Lancashire & South Cumbria Regional ILD Network. This is a Specially Commissioned service to enable the MDT to take place to confirm diagnoses and then prescribe anti fibrotics without the need for local patients to travel long distances. She is the lead ILD Nurse for the Network. Janine’s daily work is very much outpatient focused with 3 clinics per week, 2 MDT’s and managerial responsibilities. She works within a very busy respiratory service and until recently was working in the pleural service and covid follow up clinics too. Janine has been a member of the ILD-IN committee for an extended period due to covid and currently holds the position of Secretariat and her tenure will be over in 2024.

Role:
Treasurer

Organisation:
Wythenshawe Hospital

Joshua Burrough

Respiratory Physiologist

Joshua is a Highly Specialised Clinical Scientist with a special interest in Interstitial Lung Disease. At Wythenshawe Hospital’s North West Lung Centre he works closely with one of the country’s biggest specialised ILD teams, performing diagnostic and disease monitoring assessments with our patients. He is a keen patient advocate as well as having a longstanding passion for clinical research both in the respiratory field and other areas of medicine. Alongside his clinical role and ILD-IN commitments, he has a particular interest in education and training development. He is an honorary lecturer and teaching lead for the national Practitioner and Scientist Training Programmes and as part of his commitment to clinical excellence, he has recently completed the Mary Seacole Leadership Programme with the NHS Academy. He joined the ILD-IN with the hope of providing scientific input to the network as we help to shape and influence the direction of ILD care within the UK. The role of clinical scientists is often greatly under recognised and he hopes to raise awareness of the key part we play in the ILD patient pathway. He is originally from Newcastle and the Geordie accent seems to be his most widely recognised trait (aside from the mighty Newcastle United Football Club).

Committee Members

Organisation:
University Hospital Limerick Group

Carmel Mcinerney

Respiratory Advanced Nurse Practitioner

Carmel is the Respiratory Advanced Nurse Practitioner (RANP) within the University Hospital Limerick Group (UHLG), Ennis Hospital, Ennis, Co Clare, Ireland. She worked as a CNS in the Respiratory Department at this hospital since 2006 initially seeing general respiratory patients. This was the first respiratory CNS post in the hospital so she set up the service for Non-Invasive Ventilation, COPD, Asthma and Interstitial Lung Disease. The respiratory service has grown over the years and Carmel manages a caseload of respiratory patients with symptoms suggestive of Asthma, COPD and ILD in her role. Running three nurse –led clinics a week seeing new and review patients. Clinical work – Carmel originally qualified as an RGN/RCN in Temple Street Paediatric Hospital and St Vincent’s Hospital Dublin. She then went on to complete her Midwifery Studies in St Munchins Maternity Hospital, Limerick. From an education aspect she has undertaken her Post Graduate Diploma in Respiratory Care, her Masters in Advanced Practice Nursing where she got an Honours Degree, her Nurse Prescribing in Medicinal Products and her nurse prescribing of medicinal Ionising Radiation.Patients are referred to Carmel through the respiratory service and general practitioners that may have asthma or COPD and all diagnosed ILD patients. Limerick is one of the six expert ILD centres in Ireland and Carmel has setup a satellite clinic for the ILD patients in the Clare area. She manages this service with her respiratory nurse colleagues in Limerick seeing a large number of patients monthly. Patients are pleased to have good links with the respiratory nurse team including pulmonary rehabilitation and oxygen services.Public Service: Carmel is a member of ANAIL (the Irish Respiratory Nurse Group) She is an active member of the ANP national group also.Teaching – Carmel provides ILD support for respiratory nurses and health care professionals within the UHLG through local training sessions. Carmel has spoken at many national conferences on ILD and the impact of ILD on patients. She spoke recently at the patient information day organised by Irish Lung Foundation Association (ILFA) talking to patients about symptom management.Carmel has recently been appointed as adjunct clinical lecturer at the University of Limerick which is the academic partner of UHLG, providing education to the undergraduate nursing programme and the Masters Programme.

Organisation:
North Bristol NHS Trust

Sarah Mulholland

Lead respiratory pharmacist

Sarah joined the Trust in 2012 and the Bristol ILD (BILD) team in 2015. Sarah supports a team of nurses, pharmacists and pharmacy technicians to provide initiation, monitoring and supply of antifibrotics and, more recently, immunosuppressive medications. Sarah is committed to delivering compassionate care, ensuring patient safety and optimising treatment outcomes for patients with ILD. Sarah welcomes collaboration, questions and opportunities to make a positive impact in the management of ILD.

Organisation:
East Sussex Healthcare NHS Trust

Rosie Boorsma

Senior Respiratory Specialist Nurse (ILD Lead)

Rosie is a community respiratory specialist nurse. She has worked for the last 6 years prescribing oxygen and assessing patients with a variety of respiratory diseases. As the daughter of someone with ILD, Rosie was very passionate about filling the gap in support for patients with ILD. She established two support groups in East Sussex and is now part of establishing a new ILD service for the area along the Sussex coast between Seaford and Rye. She has created a Pulmonary Fibrosis handbook for patients and joined the ILD-IN to continue the development of care for this group of patients.

Organisation:
Margaret Turner Warwick Centre for Fibrosing Lung Disease

Laura Fabbri

Clinical research fellow

Laura is a respiratory doctor, she completed her medical training at the University of Perugia (IT) with postgraduate training at the University of Modena and Reggio Emilia (IT). She is a PhD student at the Imperial College London and runs ILD clinics at the Royal Brompton Hospital. Through a patient-centred approach, her research focuses on interstitial lung diseases, particularly pulmonary fibrosis. Laura advocates for patient and public involvement in research and aims to increase awareness of pulmonary fibrosis and improve early disease diagnosis.

Organisation:
Hereford Medical Group

Kerry Mills

Lead Respiratory Nurse and Co Clinical Director

Kerry currently works in Primary Care as lead Respiratory Nurse and Co Clinical Director at Hereford Medical Group, Primary Care Network, which delivers services for 50,000 patients in Hereford City. Kerry has been involved in respiratory care for 25 years and prior to working in the GP surgery was lead CNS for Respiratory for the acute trust, with a specific interest in ILD. Was involved with implementing the collaboration with tertiary colleagues in Birmingham to ensure patients received care closer to home. Kerry remains very passionate about raising the profile of ILD and early diagnosis in clinical practice and continues to deliver education and training for local and national colleagues to keep ILD on the agenda.

Where we began

The ILD-IN developed over several years, starting as an informal group of specialist nurses who provided peer support, ad hoc educational study days and shadowing opportunities for newly appointed nurses working in ILD care. In 2015 the group formally launched the ILD-IN with a committee of interdisciplinary healthcare professional to consolidate the principles of ILD care management. 

INTERSTITIAL LUNG DISEASE – INTERDISCIPLINARY NETWORK LIMITED was limited by guarantee in March 2016. This was, in part, thanks to our founding sponsors Action for Pulmonary Fibrosis, Boehringer Ingelheim, Codel Software, and Roche Pharmaceuticals.

Future Evolution

The ILD-IN is committed to supporting the needs of ILD professionals in a landscape of evolving clinical practice. As the demands on ILD services continue to outgrow the resources at our disposal, we offer a collaborative foundation for discussion amongst those on the frontline of ILD care. Through our own initiatives and collaboration with key stake holders we help to shape the narrative around the future of ILD care nationally.

We listen to our members. Join us today to be part of the future of the ILD-IN.

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