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November 1, 2017

Support Group Coordinator (London and South East Region) 12 months starting ASAP

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Role: Support Group Coordinator (London and South East Region)

Contract: 12 months starting ASAP

Pay: £200 per day, 2 days a week

Role – core objective:

To support and develop the charity’s support group work in London and South East England and to work strategically to drive the growth and development of new groups.

Role’s main duties and responsibilities:

Develop a strategy and plan for growing groups in London and the South East
Implement this plan, identifying, approaching and supporting healthcare professionals and patients with Pulmonary Fibrosis, to set up new groups and keep them running successfully.
Support and promote existing support groups in the region, maintaining regular communications and ensuring groups are given accurate, relevant and up to date information about the Charity’s relevant work/activities.
Regularly audit and map current groups in the region, where there are gaps in provision, make and implement a plan to set up new groups, liaising with local healthcare professionals and patients.
Organise and ensure that all groups are visited at least once per year by a Charity representative (trustee, ambassador or contractor) and receive a short presentation about the charity.
Manage application grants in the region and keep a record of groups, expenditure, activity, communication, membership and impact using a database system.
Ensure that up to date information about each group is listed on the Charity’s website by informing the National Support Group Coordinator and inputting support group communication on an existing data base.
Monitor and provide reports on the progress of group work in the region to the National Support Group Coordinator, Trustee lead for Support Groups and the Board of Trustees at meetings as requested.
Undertake any other duties or projects commensurate with the nature of this post as required.
The Contractor will report on any issues regarding the contract to the ‘Lead Trustee for Support Groups’ and work closely with the National Support Group Coordinator.

Personal specification:

Understand the issues surrounding pulmonary fibrosis and supportive of IPF patients and the charity’s vision, aims and values.
Excellent communication skills (verbal and written), close attention to detail and ability to communicate with a variety of people in a friendly, professional and confident manner.
Experience of working well with healthcare professionals and ability to build good working relationships with healthcare professionals, PF patients, their families and other key stakeholders (including within the charity).
Excellent project manager, able to work independently and to deadlines paying close attention to detail.
Good numeracy and budgeting skills.
Good time management, self-motivated, innovative and proactive.
Ability and willingness to travel regularly within London and South East England and occasionally to other parts of the UK.
Proficiency in Microsoft Office including Word, Excel, PowerPoint – and proficiency in use of Internet, email and social media.
Ability to work well in a remote team and willingness to work flexible hours when required to meet work demands.

To apply, please send a covering letter and your CV, detailing your experience and suitability for the role and why you are interested by Friday 20th October 2017. Interview date: 8th November.

Action for Pulmonary Fibrosis (APF)

APF was founded in 2013 by a group of patients, family members and medical professionals all with a personal or professional connection to the disease. We bring a unique perspective to the job of running the charity, which gives us a real and genuine bond with patients and families.

APF was inspired by our late chair, IPF patient Mike Bray, who felt there was a desperate need for a charity dedicated solely to this terrible disease; a charity that would put patients and families at the heart of everything it did. Since 2013, we have worked hard to support patients, raise funds for research, educate health care professionals, raise awareness of the disease and campaign on behalf of those who don’t have a voice. In a very short time, we have become recognised as the Voice of the Patient and are an authentic voice for those affected by IPF. We listen to what patients and families are experiencing and learn from them.

This approach is central to how we operate and to how we deliver the support, services and advocacy that patients and families need. We have achieved a great deal since  we started the charity but we have bold ambitions and will continue to lead the search for better outcomes in the future and champion the best care available today.

APF is looking for a self-motivated and dynamic individual with a special interest in the area of Pulmonary Fibrosis for two days a week, for a 12-month contract to develop and maintain the charity’s support group work in London and South East of England.