European Pulmonary Fibrosis Federation

Who They Are & What They Do

The European Pulmonary Fibrosis Federation (EU-PFF), established in 2016 and based in Belgium, is a not-for-profit umbrella organisation representing Pulmonary Fibrosis (PF) patient groups across Europe. EU-PFF collaborates with member organisations and partners to enhance awareness of PF in politics, public health, and research, addressing regional differences and similarities.

They work closely with medical experts and researchers to highlight the disease, its diagnostics, and treatments. EU-PFF contributes to research, scientific publications, and patient education through webinars and updates. They also organise Europe’s first PF Patient Summits and conduct an annual awareness campaign each September.