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Pulmonary Fibrosis Northern Ireland

Who They Are & What They Do

Pulmonary Fibrosis NI aims to provide support for patients, their families and carers to improve the quality of life of sufferers of Pulmonary Fibrosis in Northern Ireland; as well as raising awareness of PF, amongst the medical profession, decision-makers and the wider public and to support research into improved outcomes and greater understanding of PF.

Set up in 2015, Pulmonary Fibrosis NI works with Respiratory Consultants and Specialist Respiratory Nurses at all five Health and Social Care Trusts in Northern to provide support throughout Northern Ireland. They have 2 facilities available for respite/retreat purposes for sufferers of pulmonary fibrosis and their families. The first facility was purchased in 2022 and is a large modern static two-bedroom caravan in Ballycastle, Co Antrim. Ballycastle is a small seaside town on the north coast of Northern Ireland. The latest purchase is a five-bedroom detached house on the famous 5* Lough Erne Golf Resort Village and Hotel. The respites are prioritised for Northern Ireland patients but we would consider requests from the other nations.